MGA Facebook Page - A public page on Facebook for those connected with the MGA to get to know one another and share experiences. Click on "Like" and you will be able to write posts, post pictures, links, notes, discussion, etc. (Our page will be able to be much more interactive than the group that was created earlier this year, and will increase our exposure as it will show up in your newsfeed as well!)
If you do not have Facebook, its easy to join! Just go to www.facebook.com and follow the instructions to sign up. Facebook is an easy-to-use social networking website, with millions of people using it to connect with friends - both past and present. It is safe and you can make it as private as you want.
FDA MedWatch - The FDA Safety Information and Adverse Event Reporting Program. Get the latest information on medication alerts and recalls; you can also sign up for their e-mail list and/or RSS feed, and report problems with medication.
Drugs.com - A comprehensive and up-to-date source of drug information, providing free, peer-reviewed, accurate and independent advice on more than 24,000 prescription drugs, over-the-counter medicines & natural products. Includes a Pill Identifier and other helpful tools.
iGive.com - An easy way to raise money for the MGA! All you do is register, choose the MGA as your organization, and shop at many of the online stores you already use, with no extra cost to you - just make sure to use the store's link from iGive, and we'll receive a percentage of your purchase. You can also use iSearch, which gives us a penny or more each time you search!
GoodSearch - Another easy way to raise money for the MGA! Very similar to iGive, but no registration required and the search function is compatible with more browsers (you can make it one of your regular search tools on your browser toolbar). It also has a store, GoodShop, which gives us a percentage of your purchase at no extra cost to you, and also has coupons and discounts for many of your favorite online stores!
eBay Giving Works - This program allows sellers on eBay to donate a percentage of their earnings to us! If you're a seller, think about us when you make your listings (for instructions go here); if you're a buyer, check out any auctions that are donating to us, or, you can also make a one-time donation directly on the website!
The Cochrane Collaboration - Reviews and abstracts of articles and clinical trials on MG (some require a membership; most summaries can be viewed for free)
United Way 2-1-1 - Search the online database or just call 2-1-1 (in the greater KC area) to find helpful community resources
Job Accommodation Network - Gives information for employers and employees on working with Myasthenia Gravis; they can also give resources and assist in solving workplace disputes having to do with a disability.
Clinical Trials - Find information on ongoing clinical research trials for MG, whether you are interested in participating or just want to know what research is going on currently.
ButYouDontLookSick.com - Fun Myasthenia Gravis clothing and accessories. This site also has items for other diseases, and general items for all chronic diseases.
Turning Point - Provides a gathering place which serves the Kansas City community by providing innovative education and comprehensive support services to enhance the lives of adults and families living with any serious or chronic physical illness. Most programs are free of charge.
Well Spouse Association - An organization dedicated to helping and supporting those who are caring for a chronically ill spouse.
National Alliance for Caregiving - An organization dedicated to helping and supporting those who are caregivers for family and friends.
CaringBridge - Stay connected with family and friends during times of illness, treatment, and recovery with free, personalized web pages.
Information on H1N1 Flu - Visit these links for helpful information, and talk to your doctor about receiving the vaccine and what to do if you have symptoms: Disabilities and the Flu Flu.gov Prepare Metro KC
Myasthenia Gravis Association
Address: 6700 Troost, Suite 502, Kansas City, MO 64131 Phone: (816) 256-4100 ~ Fax: (816) 333-1402 Email: mgakc@sbcglobal.net