| Myasthenia Gravis Association of Kansas City |
Privacy Policy
MGA Donor Privacy Policy
Direct Mail Privacy Policy
Any person or organization who makes a financial contribution in response to
a Myasthenia Gravis Association Direct Mail Program solicitation, Annual
Membership Drive letter, donation envelope in a newsletter, or other
manner, shall be considered, to the extent permitted hereunder, to be a
“Donor” under this privacy policy. The MGA and all Donors are bound by the
terms of this privacy policy. The MGA is committed to protecting the privacy
of our Donors. This privacy policy discloses the privacy practices governing
the use of information submitted to the MGA through its Direct Mail Program
solicitations. Capitalized terms shall have the meaning designated in this
privacy policy.
The Information We Collect
Personal Information
The MGA may collect personal information such as names, company names,
titles, addresses, telephone numbers, fax numbers, e-mail addresses, and
payment information (such as credit card numbers) from Donors. For
example, the MGA may collect personal information submitted from Donors
via return mail or during telephone calls. The MGA may also collect such
information by appending from “public records” such as, but not limited to,
United States Postal Change of Address (COA) information and local and
state government records. The MGA may also append information to its
Direct Mail files concerning the Donors’ volunteer activities on behalf of the
MGA such as, but not limited to, participation in local chapter fund-raising
events. By submitting personal information to the MGA, Donors acknowledge
that they have read this privacy policy, understand it, agree to its terms and
authorize the MGA to collect, use and disclose personal information pursuant
to the terms of this privacy policy.
Children
The MGA does not knowingly solicit contributions from individuals under 18
years of age. Because the MGA obtains prospective new donor names from
such lists as magazine subscribers, which do not append the age of
subscribers, it is occasionally unavoidable.
How We Use It
The MGA uses personal information collected from Donors, such as names
and e-mail addresses, to respond to Donor inquiries, to process Donor
requests for information, for issuing donation receipts, to help in deciding
who receives future Direct Mail Program solicitations, to process User
donations, to help organize fund-raising events, and to inform Donors of new
programs and services.
Donor Names are published in each bi-monthly newsletter as their name is
printed on their donation check or as otherwise requested. The Donation
amount is not listed, but Donors are categorized by donation amount level –
as printed on the MGA Donation Envelope.
Who We Share It With
The MGA does not share the names and addresses of its donors with other
organizations. We do not share telephone numbers, e-mail addresses, or any
financial information about any person.
Notwithstanding other provisions of this privacy policy, we may disclose
personal information in special cases when we have found it necessary to
identify, contact or bring legal action against someone who may be violating
any agreement or may be causing injury to or interference with the MGA, its
Donors, or anyone else that could be harmed by such activities. The MGA
reserves the right to disclose your personal information as explicitly set forth
in this privacy policy or any agreement agreed to by you, or as otherwise
required by government or law enforcement officials. The MGA can, and you
hereby authorize us to, disclose any information to law enforcement or other
parties that the MGA in its sole discretion, believes is required or appropriate
in order to comply with the law.
MGA Disclosure Policy
The MGA does communicate directly to Donors (both new and continuing)
to its Direct Mail Program, at least annually, a means for both new and
continuing donors to inform the MGA that they do not want their names and
addresses shared outside the MGA.
How to Access, Review and Update Your Information
Should your personal information need to be reviewed, updated, corrected or
deleted, please submit your changes to:
Myasthenia Gravis Association
6700 Troost, Suite 502
Kansas City, MO 64131.
Or call (816) 256-4100. You may also send an email to mgakc@sbcglobal.net.
Policy Regarding Removing Names from Mailing List
You may request not to be contacted by the MGA in connection with any
solicitations, new services, updates, programs or promotions. Requests not to
be contacted by the MGA should be sent to:
Myasthenia Gravis Association
6700 Troost, Suite 502
Kansas City, MO 64131.
You may also call (816) 256-4100.
You may send an email to mgakc@sbcglobal.net..
It is MGA policy to remove (flag) names from our mailing list immediately
upon request. It is important to point out that we legally cannot remove a
name (record) from our database if that record contains information
concerning donations. The record is marked to receive no other mailings
(flagged).
It is MGA policy not to remove names from our mailing list unless the request
to take such action is communicated by Donors or their legal representatives.
Requests to take such action by other third parties cannot be honored.
Security
MGA data files have security measures in place to protect against the loss,
misuse and alteration of information under our control. However, we cannot
guarantee that such security measures will be sufficient, will not be breached,
and that your personal information may not be disclosed or otherwise
accessed in an unauthorized manner. Certain information may be transmitted
to you by electronic mail. Although it is illegal to intercept or disclose these
messages under Federal law, these transmissions are not secured.
| Myasthenia Gravis Association Address: 6700 Troost, Suite 502, Kansas City, MO 64131 Phone: (816) 256-4100 ~ Fax: (816) 333-1402 Email: mgakc@sbcglobal.net Privacy Policy |
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KANSAS CITY CHAPTER