KANSAS
LOCATION
Topeka & Shawnee County Library
1515 SW 10th Ave
Topeka, KS 66604
Ascension Via Christi St. Francis
929 N Saint Francis
Wichita, KS 67214
University of Kansas Medical Center MG Clinic || Kansas City
TIME
6:30 PM
11:30 AM-1:30 PM
10:00 AM-12:00 PM
12:00-1:30 PM
6:00- 7:30 PM
10:00-11:30 AM
10:30-11:30 AM
MEETINGS
Quarterly
3rd Wednesday of the month
Quarterly (Saturdays)
Every other month (Thursdays)
Quarterly
Quarterly (Saturdays)
Last Thursday of Every Month
What makes the MGA different? Our programs and services have been built to support patients and families impacted by MG on a personal level. Whether you are in search of a new neuromuscular provider or looking for someone to relate to as you go through the diagnostic process; the MGA is here to guide you through your MG journey with compassion and care.
GROUP
Springdale
LOCATION
TBD
TBD
St. Joseph Medical Center, Comm. Center D
1000 Carondelet Drive
Kansas City, MO, 64114
Primrose Retirement Communities
8559 North Line Creek Parkway
Kansas City, MO 64154
Residence Inn by Marriott
1303 E. Kingsley Street
Springfield, MO 65810
Glendale City Hall Auditorium
424 Sappington Road
St. Louis, MO 63112
Kaldi's Coffee
120 S. Kirkwood Road
Kirkwood, MO, 63122
CoxHealth-Jared Neuroscience Center || Springfield
VIRTUAL SUPPORT GROUPS
NEBRASKA
Community Events
CONTACT
kamibrendel@mgakc.org
allisonfoss@mgakc.org
The MGA is also proud to provide reliable resources that you can trust and depend on.
Click the button below to explore our resources page.
Programs & Services
MEETINGS
3rd Monday of the Month
Quarterly
Our program coordinators are committed to engaging with MG patients, their families, and their care teams every day at the MGA. Whether someone has been recently diagnosed with MG or has been managing this autoimmune disorder for the majority of their life, our program coordinators work diligently to ensure people with Myasthenia Gravis are supported. Both Kami and Meridith take a collaborative approach in clinic, working directly with the neurology teams and patients to promote comprehensive care. Ultimately, the role of the program coordinator is to serve as another tool in an MG patient's toolbox, encouraging patients to approach their MG holistically and assist in the management of living with this chronic disease.
St. Luke's Medical Center || Kansas City
GROUP
Omaha
MEETINGS
Every other Month (Sundays)
CONTACT
Dianna McCarty
402-426-8006
dmccarty@huntel.net
GROUP
Monthly Meet-Up
MGA Youth Group
TIME
10:00-12:00 PM
Young Friends of MGA
MEETINGS
Odd number of Months (Saturdays)
ARKANSAS
TIME
5:30-7:30 PM
1:00-3:00 PM
KANSAS CITY, MO
St. Luke’s Hospital- Country Club Plaza | 2 Clinics
Clinic 1
Established in 2000 in partnership with Dr. Michael Schwartzman
Clinic Schedule: Every 2nd Tuesday and 4th Thursday of the month
Patient Care Specialist: Kami Brendel
Dr. Michael Schwartzman is an Assistant Clinical Professor at UMKC School of Medicine practices at Saint Luke’s Marion Bloch Neuroscience Institute in Kansas City. The MG clinic with Dr. Schwartzman was built with the support of Diana Wilmoth, a registered nurse and a patient living with MG. Diana served as the clinic volunteer coordinator for the MGA and assisted in the operations of this clinic for over 20 years.
Clinic 2
Established in 2022 in partnership with Dr. Nathan McGraw
Clinic Schedule: 2nd Wednesday of the month
Patient Care Specialist: Kami Brendel
More info to come.
University of Kansas Medical Center
Established in 2002 in partnership with Dr. Richard Barohn
Clinic Schedule: Every Tuesday and Thursday
Patient Care Specialist: Kami Brendel
Dr. Richard Barohn is the Executive Vice Chancellor for Health Affairs at the University of Missouri and a professor in the Department of Neurology. At the time of this clinic’s establishment, Dr. Barohn was Chair of the Neurology Department at the University of Kansas Medical Center. Currently, the University of Kansas Medical Center MG clinic operates under the leadership of a dedicated team of neurologists including Dr. Mazen Dimachkie, Dr. Mamatha Pasnoor, Dr. Constantine Farmakidis, Dr. Vernita Hairston-Mitchell, and Dr. Omar Jawdat. To learn more about these physicians, head to our medical advisory committee page.
SAINT LOUIS, MO
SSM Health St. Louis University Hospital
Established in 2020 in partnership with Dr. Ghazala Hayat, MD, FAAN, FANA
Clinic Schedule: Every Tuesday
Program Coordinator: Meridith O’Connor, MSW
Dr. Ghazala Hayat is the Director of Neuromuscular Services and Clinical Neurophysiology and a professor of neuromuscular diseases in the Department of Neurology at Saint Louis University School of Medicine. She is also the Director of the ALS Center of Excellence. Dr. Hayat specializes in clinical neurophysiology, nerve conduction studies, electromyography, electroencephalograms, and spasticity and headaches. The MGA collaborated with Dr. Hayat as there was a growing need for MG patient support in the St. Louis and surrounding area.
SPRINGFIELD, MO
CoxHealth- Jared Neuroscience Center
Established in 2022 in partnership with Dr. Tania Papsdorf
Clinic Schedule: One Wednesday every month dependent upon the physician’s schedule
More info to come.
MGA Triple Crown Showdown 5K
Cy’s Crown Town Trivia Night (annual benefit with auction)
MGA Snowflake Shuffle 0.1K
Annual Meeting & Educational Seminar
Young Friends of MGA || Saint Louis, MO
Quarterly meetings
6:00 PM
RSVP:
Meridith O'Connor
816-256-4100
meridithoconnor@mgakc.org
TIME
6:30-7:30 PM
TBD
St. Louis University Hospital MG Clinic || St. Louis
MISSOURI
CONTACT
Roger Huff
479-790-3022
jrhuff1@cox.net
Onsite Clinics
GROUP
Topeka
Wichita
Information regarding our Young Friends Groups will be communicated through email and social media.
Details regarding locations and times can also be found on our calendar.
Support Groups
Young Friends of MGA || Kansas City, MO
Quarterly meetings
6:00 PM
RSVP:
Allison Foss
913-940-3065
allisonfoss@mgakc.org
LOCATION
Schmieding Center for Senior Health
2422 N. Thompson, Suite B
Springdale, AR 72764
LOCATION
Calvary Lighthouse Church
2941 North 80th Street
Omaha, NE 68134
CONTACT
the MGA office
816-256-4100
kamibrendel@mgakc.org
Larry or Dana Paxson
316-269-9120
dkptiffany@gmail.com
LOCATION
Virtual
Virtual
MEETINGS
Quarterly
Quarterly (Saturdays)
GROUP
Mid-Missouri
Eastsiders Lunch Bunch
Kansas City
Kansas City North
Springfield
St. Louis
St. Louis (Coffee with a Coordinator)
CONTACT
Jonni Sutton
573-825-6031
jonnikayes@icloud.com
the MGA office
816-256-4100
kamibrendel@mgakc.org
the MGA office
816-256-4100
kamibrendel@mgakc.org
Sandy Gardner
816-716-9681
imsandyg@aol.com
the MGA office
816-256-4100
info@mgakc.org
the MGA office
816-256-4100
meridithoconnor@mgakc.org
the MGA office
816-256-4100
meridithoconnor@mgakc.org
Resources
TIME
2:30-4:30 PM
At the MGA, we host a variety of events that not only bring people with MG together, but offer opportunities for friends, family, and other people in surrounding areas to support patients, learn about Myasthenia Gravis, and build communities.
Below is a list of some of our featured events! Click the button below to learn more about past events and upcoming events that you can participate in.