Programs & Services

GROUP

Springdale

LOCATION

TBD

St. Joseph Medical Center, Comm. Center D

1000 Carondelet Drive

Kansas City, MO, 64114

Primrose Retirement Communities
8559 North Line Creek Parkway
Kansas City, MO 64154

Residence Inn by Marriott

1303 E. Kingsley Street

Springfield, MO 65810

Glendale City Hall Auditorium

424 Sappington Road

St. Louis, MO 63112

Kaldi's Coffee

120 S. Kirkwood Road

Kirkwood, MO, 63122

CoxHealth-Jared Neuroscience Center || Springfield

LOCATION

Schmieding Center for Senior Health
2422 N. Thompson, Suite B
Springdale, AR 72764

Young Friends of MGA || Saint Louis, MO

Quarterly meetings

6:00 PM

RSVP:

Meridith O'Connor
816-256-4100
meridithoconnor@mgakc.org

Young Friends of MGA

MEETINGS

Odd number of Months (Saturdays)

VIRTUAL SUPPORT GROUPS

NEBRASKA

ARKANSAS

TIME

6:30-7:30 PM

TBD

St. Louis University Hospital MG Clinic || St. Louis

TIME

5:30-7:30 PM

1:00-3:00 PM

MISSOURI

Community Events

CONTACT

kamibrendel@mgakc.org

allisonfoss@mgakc.org

The MGA is also proud to provide reliable resources that you can trust and depend on.

Click the button below to explore our resources page.

Programs & Services

GROUP

Mid-Missouri

Eastsiders Lunch Bunch

Kansas City

Kansas City North

Springfield

St. Louis

St. Louis (Coffee with a Coordinator)

MEETINGS

3rd Monday of the Month

Quarterly

TIME

6:30 PM

11:30 AM-1:30 PM

10:00 AM-12:00 PM

12:00-1:30 PM

6:00- 7:30 PM

10:00-11:30 AM

10:30-11:30 AM

MEETINGS

Quarterly

3rd Wednesday of the month

Quarterly (Saturdays)

Every other month (Thursdays)

Quarterly

Quarterly (Saturdays)

Last Thursday of Every Month

What makes the MGA different? Our programs and services have been built to support patients and families impacted by MG on a personal level. Whether you are in search of a new neuromuscular provider or looking for someone to relate to as you go through the diagnostic process; the MGA is here to guide you through your MG journey with compassion and care.

Events

LOCATION

Virtual

Support Groups

Resources

University of Kansas Medical Center MG Clinic || Kansas City

CONTACT

Jonni Sutton
573-825-6031
jonnikayes@icloud.com

the MGA office
816-256-4100
kamibrendel@mgakc.org

Sandy Gardner
816-716-9681
imsandyg@aol.com

the MGA office
816-256-4100
info@mgakc.org

the MGA office
816-256-4100
meridithoconnor@mgakc.org

CONTACT

Roger Huff
479-790-3022
jrhuff1@cox.net

St. Luke's Medical Center || Kansas City

Information regarding our Young Friends Groups will be communicated through email and social media.

Details regarding locations and times can also be found on our calendar.

TIME

10:00-12:00 PM

Donate Now

GROUP

Topeka

Wichita

GROUP

Monthly Meet-Up

MGA Youth Group

LOCATION

Calvary Lighthouse Church
2941 North 80th Street
Omaha, NE 68134

MEETINGS

Every other Month (Sundays)

KANSAS CITY, MO

St. Luke’s Hospital- Country Club Plaza | 2 Clinics
Clinic 1
Established in 2000 in partnership with Dr. Michael Schwartzman
Clinic Schedule: Every 2nd Tuesday and 4th Thursday of the month
Patient Care Specialist: Kami Brendel

Dr. Michael Schwartzman is an Assistant Clinical Professor at UMKC School of Medicine practices at Saint Luke’s Marion Bloch Neuroscience Institute in Kansas City. The MG clinic with Dr. Schwartzman was built with the support of Diana Wilmoth, a registered nurse and a patient living with MG. Diana served as the clinic volunteer coordinator for the MGA and assisted in the operations of this clinic for over 20 years.

Clinic 2
Established in 2022 in partnership with Dr. Nathan McGraw
Clinic Schedule: 2nd Wednesday of the month
Patient Care Specialist: Kami Brendel
More info to come.

University of Kansas Medical Center
Established in 2002 in partnership with Dr. Richard Barohn
Clinic Schedule: Every Tuesday and Thursday
Patient Care Specialist: Kami Brendel

Dr. Richard Barohn is the Executive Vice Chancellor for Health Affairs at the University of Missouri and a professor in the Department of Neurology. At the time of this clinic’s establishment, Dr. Barohn was Chair of the Neurology Department at the University of Kansas Medical Center. Currently, the University of Kansas Medical Center MG clinic operates under the leadership of a dedicated team of neurologists including Dr. Mazen Dimachkie, Dr. Mamatha Pasnoor, Dr. Constantine Farmakidis, Dr. Vernita Hairston-Mitchell, and Dr. Omar Jawdat. To learn more about these physicians, head to our medical advisory committee page.

SAINT LOUIS, MO

SSM Health St. Louis University Hospital
Established in 2020 in partnership with Dr. Ghazala Hayat, MD, FAAN, FANA
Clinic Schedule: Every Tuesday
Program Coordinator: Meridith O’Connor, MSW

Dr. Ghazala Hayat is the Director of Neuromuscular Services and Clinical Neurophysiology and a professor of neuromuscular diseases in the Department of Neurology at Saint Louis University School of Medicine. She is also the Director of the ALS Center of Excellence. Dr. Hayat specializes in clinical neurophysiology, nerve conduction studies, electromyography, electroencephalograms, and spasticity and headaches. The MGA collaborated with Dr. Hayat as there was a growing need for MG patient support in the St. Louis and surrounding area.

SPRINGFIELD, MO

CoxHealth- Jared Neuroscience Center
Established in 2022 in partnership with Dr. Tania Papsdorf
Clinic Schedule: One Wednesday every month dependent upon the physician’s schedule
More info to come.

LOCATION

Topeka & Shawnee County Library
1515 SW 10th Ave
Topeka, KS 66604

Ascension Via Christi St. Francis
929 N Saint Francis
Wichita, KS 67214

At the MGA, we host a variety of events that not only bring people with MG together, but offer opportunities for friends, family, and other people in surrounding areas to support patients, learn about Myasthenia Gravis, and build communities.

Below is a list of some of our featured events! Click the button below to learn more about past events and upcoming events that you can participate in.

CONTACT

Dianna McCarty
402-426-8006
dmccarty@huntel.net

Our program coordinators are committed to engaging with MG patients, their families, and their care teams every day at the MGA. Whether someone has been recently diagnosed with MG or has been managing this autoimmune disorder for the majority of their life, our program coordinators work diligently to ensure people with Myasthenia Gravis are supported. Both Kami and Meridith take a collaborative approach in clinic, working directly with the neurology teams and patients to promote comprehensive care. Ultimately, the role of the program coordinator is to serve as another tool in an MG patient's toolbox, encouraging patients to approach their MG holistically and assist in the management of living with this chronic disease.

MEETINGS

Quarterly

Quarterly (Saturdays)