KANSAS
Our program coordinators are committed to engaging with MG patients, their families, and their care teams every day at the MGA. Whether someone has been recently diagnosed with MG or has been managing this autoimmune disorder for the majority of their life, our program coordinators work diligently to ensure people with Myasthenia Gravis are supported. Both Tanya and Meridith take a collaborative approach in clinic, working directly with the neurology teams and patients to promote comprehensive care. Ultimately, the role of the program coordinator is to serve as another tool in an MG patient's toolbox, encouraging patients to approach their MG holistically and assist in the management of living with this chronic disease.
St. Luke's Medical Center || Kansas City
GROUP
Omaha
At the MGA, we host a variety of events that not only bring people with MG together, but offer opportunities for friends, family, and other people in surrounding areas to support patients, learn about Myasthenia Gravis, and build communities.
Below is a list of some of our featured events! Click the button below to learn more about past events and upcoming events that you can participate in.
LOCATION
Calvary Lighthouse Church
2941 North 80th Street
Omaha, NE 68134
CONTACT
the MGA office
816-256-4100
info@mgakc.org
Larry or Dana Paxson
316-269-9120
dkptiffany@gmail.com
GROUP
Topeka
Wichita
LOCATION
Virtual
Virtual
TIME
2:30-4:30 PM
Information regarding our Young Friends Groups will be communicated through email and social media.
Details regarding locations and times can also be found on our calendar.
Support Groups
In January 2020, the MGA began a partnership with SSM Health St. Louis University Hospital in collaboration with Dr. Ghazala Hayat and Dr. Jafar Kafaie, experts in the field of neurology and more specifically, neuromuscular disease. The two physicians see MG patients on Tuesdays, followed by a visit from Meridith O'Connor, St. Louis Program Coordinator. Meridith is currently working on building this program in hopes to later expand our clinic services in the pediatric population with Dr. Kafaie at SSM Health Cardinal Glennon Children's Hospital. Also a Myasthenia Gravis patient, Meridith is able to connect with patients on a unique level to provide resources and support to those in need.
CONTACT
Jonni Sutton
573-825-6031
jonnikayes@icloud.com
the MGA office
816-256-4100
info@mgakc.org
the MGA office
816-256-4100
info@mgakc.org
Sandy Gardner
816-716-9681
imsandyg@aol.com
the MGA office
816-256-4100
info@mgakc.org
the MGA office
816-256-4100
info@mgakc.org
MGA Triple Crown Showdown 5K
MGA Snowflake Shuffle
Fishing for a Cure Fishing Derby
Cy’s Crown Town Trivia Night (annual benefit with auction)
Annual Educational Conference
MEETINGS
Every other Month (Sundays)
University of Kansas Medical Center
CONTACT
Dianna McCarty
402-426-8006
dmccarty@huntel.net
Resources
MEETINGS
Quarterly
Quarterly (Saturdays)
GROUP
Monthly Meet-Up
MGA Youth Group
TIME
10:00-12:00 PM
LOCATION
Topeka & Shawnee County Library
1515 SW 10th Ave
Topeka, KS 66604
Ascension Via Christi St. Francis
929 N Saint Francis
Wichita, KS 67214
University of Kansas Medical Center MG Clinic || Kansas City
Young Friends of MGA || Kansas City, MO
Quarterly meetings
6:00 PM
RSVP:
Allison Foss
913-940-3065
allisonfoss@mgakc.org
Organized in 2002, the University of Kansas Medical Center MG Clinic was established under the leadership of Dr. Richard Barohn, Chair of the Neurology Department and member of our medical advisory committee. Dr. Barohn is a world-renowned MG specialist and researcher; he alongside his team offer a unique opportunity for patients and their families to receive care based on the most current research and treatment methods. The team consists of 5 other dedicated neurologists including Dr. Mazen Dimachkie, Dr. Mamatha Pasnoor, Dr. Constantine Farmakidis, Dr. Vernita Hairston-Mitchell, and Dr. Omar Jawdat. MG patients are typically seen on Tuesdays and Thursdays, followed by a visit from Tanya Renner, our Kansas City Program Coordinator.
GROUP
Springdale
St. Louis University Hospital
LOCATION
Services for Independent Living
1401 Hathman Place
Columbia, MO, 65201
TBD
St. Joseph Medical Center, Comm. Center D
1000 Carondelet Drive
Kansas City, MO, 64114
Primrose Retirement Communities
8559 North Line Creek Parkway
Kansas City, MO 64154
The Library Center
4653 S. Campbell,
Springfield, MO 65810
Glendale City Hall Auditorium
424 Sappington Road
St. Louis, MO 63112
LOCATION
Schmieding Center for Senior Health
2422 N. Thompson, Suite B
Springdale, AR 72764
Young Friends of MGA || Saint Louis, MO
Quarterly meetings
6:00 PM
RSVP:
Meridith O'Connor
816-256-4100
meridithoconnor@mgakc.org
Young Friends of MGA
MEETINGS
Odd number of Months (Saturdays)
VIRTUAL SUPPORT GROUPS
NEBRASKA
ARKANSAS
TIME
6:30-7:30 PM
TBD
St. Louis University Hospital MG Clinic || St. Louis
TIME
5:30-7:30 PM
1:00-3:00 PM
MISSOURI
Community Events
CONTACT
info@mgakc.org
allisonfoss@mgakc.org
The MGA is also proud to provide reliable resources that you can trust and depend on.
Click the button below to explore our resources page.
Programs & Services
GROUP
Mid-Missouri
Eastsiders Lunch Bunch
Kansas City
Northland
Springfield
St. Louis
St. Luke's Medical Center
MEETINGS
3rd Monday of the Month
Quarterly
TIME
6:30 PM
11:00 AM
10:00 AM-12:00 PM
12:00-1:30 PM
6:00- 8:00 PM
10:00-11:30 AM
MEETINGS
Quarterly
3rd Wednesday of the month
Quarterly (Saturdays)
Every other month (Thursdays)
Quarterly
Quarterly (Saturdays)
What makes the MGA different? Our programs and services have been built to support patients and families impacted by MG on a personal level. Whether you are in search of a new neuromuscular provider or looking for someone to relate to as you go through the diagnostic process; the MGA is here to guide you through your MG journey with compassion and care.
CONTACT
Roger Huff
479-790-3022
jrhuff1@cox.net
Onsite Clinics
St. Luke's Medical Center in Kansas City is run by Dr. Michael Schwartzman of St. Luke’s Health System. As a doctor of osteopathic medicine, Dr. Schwartzman is a neurologist who takes a whole-person approach when treating his patients. Those who attended clinic in the past had the privilege of meeting Diana Wilmoth, clinic volunteer coordinator for our organization. Diana is a registered nurse and also living with MG; she assisted in the operations of this clinic for over 20 years, however, recently retired this past year. The clinic meets every second Tuesday and fourth Thursday of the month and is now run by Tanya Renner, our Kansas City Program Coordinator.